Web Survey Bibliography
The use of the Internet for searching and sharing health information and for health care interactions may have a great potential for families of children affected with rare diseases. We conducted an online survey among Italian families of patients with rare diseases with the objective to describe their Internet user profile, and to explore how Internet use affects their health decisions.
All members of UNIAMIO FIMR, a federation of associations of patients with rare diseases, were invited via mail to participate in an online questionnaire including questions on socio-demographic and clinical information, Internet use with a specific focus on health, and impact of web information on health behaviors. Logistic regression models were used to explore the effect of socio-demographic variables and Internet user profile on dependent variables representing the impact of web information on health behaviors. Multiple imputation by chained equations was applied.
Italian parents of patients with rare diseases are active Internet users, engaged in information search and in online communities.
Physicians, health care facilities and health agencies have a great opportunity to engage in online interactions for empowering families of patients of children affected with rare diseases.
Homepage (Abstract)/ (Full text)
Web survey bibliography - Italy (57)
- Web Health Monitoring Survey: A New Approach to Enhance the Effectiveness of Telemedicine Systems; 2017; Romano, M. F.; Sardella, M. V.; Alboni, F.
- Web Health Monitoring Survey: A New Approach to Enhance the Effectiveness of Telemedicine Systems ; 2016; Romano, M. F.; Sardella, M. V.; Alboni, F.
- Recommended Practices for the design of business surveys questionnaires; 2016; Macchia, S.
- Cheating in web surveys. Evidence from a split-ballot repeated experiment on knowledge questions on...; 2015; Ladini, R.; Vezzoni, C.
- 640 Current trends in management of high-risk prostate cancer in Europe: Results of a web-based survey...; 2014; Briganti, A., Isbarn, H., Ost, P., Ploussard, G., Sooriakumaran, P., Van Den Bergh, R.C.N., Van Oort...
- The invisible Interviewer: Old and New Methodological Issues in Online Research; 2014; Niero, M.
- The need of and the demand for completing surveys on mobile devices; 2014; Toninelli, D., Revilla, M., Ochoa, C.
- Survey participation via mobile devices in a probability-based online-panel: Prevalence, determinants...; 2014; Poggio, T., Bosnjak, M., Weyandt, K.
- Web-respondent-driven sampling; 2014; Bianchi, A., Biffignandi, S., Artaz, R.
- Prioritisation of alternatives with analytical hierarchy process plus response latency and web survey...; 2014; Barone, S. Errore, A., Lombardo, A.
- Modelling ”don’t know” responses in rating scales; 2014; Manisera, M., Zuccolotto, P.
- How much is shorter CAWI questionnaire VS CATI questionnaire?; 2014; Bartoli, B.
- Online mobile surveys in Italy: coverage and other methodological challenges; 2014; Poggio, T.
- Migraine and pregnancy: an internet survey; 2013; Allais, G. et al.
- The internet user profile of Italian families of patients with rare diseases: a web survey; 2013; Tozzi, A. E., Mingarelli, R., Agricola, E., Gonfiantini, M., Pandolfi, E., Carloni, E., Gesualdo, F.,...
- Web Surveys and Official Statistics: Perspectives and Cases ; 2013; Martelli, B.
- The challenge of a mixed-mode design survey and new IT tools application: the case of the Italian Structure...; 2013; Cardinaleschi, S., De Santis, S., Rocci, F., Spinelli, V.
- The Design of the Online Questionnaire of the Italian Population Census ; 2013; Tininini, L., Virgillito, A.
- The behaviour of respondents while filling in a web questionnaire: the case of the Italian business...; 2013; Masselli, M., Nuccitelli, A.
- A web-based Census of services: an ISTAT evolutionary study ; 2013; Cesaro, A., Palazzi, B., Paterniti, M., Ranaldi, P.
- A web based management system for addressing census complexity: the Italian experience; 2013; Bruno, M., Giacummo, M., Silipo, M., Vaste, G.
- Online Survey on Twitter: A Urological Experience; 2013; Dal Moro, F.
- Web Panel Representativeness; 2013; Bianchi, A., Biffignandi, S.
- Measuring the impact of the Web: Rasch modelling for survey evaluation; 2013; Annoni, P., Weziak-Bialowolska, D., Farhan, H.
- Responsive design for mixed-mode panel data; 2013; Bianchi, A., Biffignandi, S.
- Adjusting for bias in a mixed-mode CAWI survey on University students ; 2013; Clerici, R., Giraldo, A.
- Comparative analysis of data from web and face-to-face surveys. A case study on e-commerce in young...; 2013; Cappello, C., Pellegrino, D.
- The Relation of Survey Topic and Participation Behavior. Analyzing Unit Nonresponse using web-generated...; 2013; Zillmann, D., Schmitz, A., Blossfeld, H. P.
- A walking exercise on a tightrope: trying to balance coverage, probabilistic sampling and the costs...; 2013; Poggio, T.
- Norme di qualita' Assirm (Assirm quality rules]; 2012
- Social research in online context: methodological reflections on web surveys from a case study; 2012; Pandolfini, V.
- Survey Data Collection and Integration; 2012; Davino, C., Fabbris, L.
- Online Data Collection in the Agro-Food Sector; 2012; Biffignandi, S., Artaz, R.
- Mobile Survey Participation Rates in Commercial Market Research: A Meta-Analysis; 2012; Bosnjak, M., Poggio, T., Becker, K. R., Funke, F., Wachenfeld, A., Fischer, B.
- Panel retention rate and data quality: experimental results drawing on Reciprocity design; 2012; Biffignandi, S., Artaz, R.
- Web Surveys: Methodological Problems and Research Perspectives; 2012; Biffignandi, S., Bethlehem, J.
- A Generalized System for Aided Development and Monitoring of Web Surveys; 2011; Torelli, R.
- Using survey data collection as a tool for improving the survey process; 2011; Biffignandi, S., Perani, G., Laureti, A.
- Facebook sampling methods: some methodological proposals; 2011; Macrì, E., Tessitore, C.
- Errors within web-based surveys: a comparison between two different tools for the analysis of tourist...; 2011; Polizzi, G., Oliveri, A. M.
- Use of new technologies in social research: Self-administered mobile surveys; 2011; Bosnjak, M.
- Modeling non-sampling errors and participation in Web surveys; 2010; Biffignandi, S.
- Web-based macroseismic survey in Italy: method validation and results; 2010; Sbarra P., Tosi, P., De Rubeis, V.
- Web-based versus paper-based data collection for the evaluation of teaching activity: empirical evidence...; 2010; Lalla, M., Ferrari, D.
- Web based macroseismic survey: fast information exchange and elaboration of seismic intensity effects...; 2009; De Rubeis, V., Sbarra P., Sorrentino, D., Tosi, P.
- Factors Contributing to Participation in Web‐based Surveys among Italian University Graduates; 2009; Cimini, C., Girottu, C., Gasperoni, G.
- Integration of different data collection techniques using the propensity score; 2009; Camillo, F., Conti, V., Ghiselli, S.
- Modelling online survey participation among Italian university graduates ; 2009; Cimini, C., Girotti, C., Gasperoni, G.
- Coverage rates of mobile telephones and the Internet in Italy ; 2009; Fabbris, L., Gorelli, S.
- An experiment on the effects of non-response reweighting on estimators' precision in a web survey; 2009; Fabrizi, E., Biffignandi, S., Toninelli, D.